Friday, February 18, 2011

Symtoms of ITP

The symptoms of ITP tend to vary in intensity between those effected by it.

I tend to have a fairly mild response to a low level of platelets, compared with some of the nasty images I've seen on google.

According to the US NIH;

Having a low platelet count doesn’t cause symptoms. However, the bleeding that a low platelet count can cause may have the following signs and symptoms:

  • Pinpoint red spots on the skin that often are found in groups and may look like a rash. The spots, called petechiae, are due to bleeding under the skin.
  • Bruising or purplish areas on the skin or mucous membranes (such as in the mouth) due to bleeding under the skin. The bruises may occur for no known reason. This type of bruising is called purpura. More extensive bleeding can cause hematomas. A hematoma is a collection of clotted or partially clotted blood under the skin. It looks or feels like a lump.
  • Nosebleeds or bleeding from the gums (for example, when dental work is done).
  • Blood in the urine or stool (bowel movement).

Any kind of bleeding that's hard to stop could be a sign of ITP. This includes menstrual bleeding in women that’s heavier than usual.

Bleeding in the brain is rare, and the symptoms of bleeding in the brain may vary in severity.

Exhaustion
Some places on the internet deny that ITP should cause you to feel tired and leave you battling with exhaustion (maybe this is true if your platelet levels are above the critical zone) but my Drs are never surprised I'm exhausted. This is one of the first things I notice and the one symptom I find the most difficult to deal with especially when it leads to lethargy and the sensation of limb weakness.

Headaches

I sometimes get sharp, short lived headaches, this is probably due more to the weariness factor than ITP itself.

Mild Paraesthesiae
A tingling or burning sensation in the skin like pins and needles.

I have increasingly been getting this, especially when I'm in bed. It's not as uncomfortable or as intense as pins and needles but more like a random tingling in the toes/foot and fingers. Lately I've also been getting a sensation in parts of my hands that I can only describe as a burning, stinging feeling, as if I'd recently scolded or burnt it.

This may be a reaction to the steroid treatment rather than a symptom of ITP.

Petechiae (Blood Spots)
Flat roundish red spots under the skin which are caused by blood leaking from the capillaries in to the the skin. These can be anywhere on the body including inside the mouth.

I tend to get them most commonly on my chest, arms and legs, especially around my ankles. They can be quite scattered or in clumped in 'crops'.

Purpura
Are larger, darker spots or areas of bleeding that become purple or brown bruises caused by bleeding under the skin.

Bruising
I get a lot of bruises when my platelets are low and I couldn't tell you where I'd get most of them from. They're ususally the yellow or brown variety but occasionally I get a lovely purple one. The legs seem to be most vulnerable for this.

Bleeding
[note: If you have ITP and you hit your head go to your GP or ED as it may cause bleeding on the brain.]
Some people maybe have blood in their stools or urine or related spotting. Women may have much heavier periods. You maybe susceptible to nosebleeds and bleeding gums when brushing your teeth. Blood filled blisters may appear in the mouth and on lips. If cut, bleeding will be much, much slower to stop. "In general the more bleeding symptoms you have, the lower your platelet count" according to the PDSA.

When my platelets are low I get bleeding gums on doing my teeth and they are sometimes quite raw. I don't tend to get nose bleeds, though I sometimes have small blood clots on blowing my nose (what they call mild epistaxis) and spotting. This was the case even when my platelet count was 2!! unless I'm cut or punctured I don't tend to bleed.


I hope this gives you an idea of what to look for if you think you, or someone else you know, has ITP. Remember some people will have a much milder set of symptoms than others.

6 comments:

  1. Hi everybody so glad to find this group .I have itp for last 3 yrs progressively getting worse platelet count 2 in June .I'm so so glad to hear someone else feels exhausted my doc doesn't seem to think I should . Going to hospital on Tuesday for ivig treatment didn't work before maybe this time .hope you all she doing ok would love to hear from anyone else xx

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  2. Hi everybody so glad to find this group .I have itp for last 3 yrs progressively getting worse platelet count 2 in June .I'm so so glad to hear someone else feels exhausted my doc doesn't seem to think I should . Going to hospital on Tuesday for ivig treatment didn't work before maybe this time .hope you all she doing ok would love to hear from anyone else xx

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  3. Was diagnosed two years ago. Prednisone didn't work..made me crazy with the 60mg dose I was on. IVIG made my platelets go down. Did 4 rounds of rituximab ending mid June, platelets finally went up a bit by Sept.

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  4. Rosari is your doctor doing Iron studies and if so what does he say? Something to consider. Yes, I am tired but I don't sleep due to the burning sensation in my leg that keeps me awake. For me it is a sign that my platelets are down. Best of luck, hope you are feeling better.

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  5. Hello Everybody! It's nice to see a page with all of this information. I was diagnosed 4 years ago in 6th grade. Platelets went down to 3k but Prednisone brought it back up to a healthy level. My ITP so it comes out when I get sick, like the flu.

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